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Dare to Move: An MG awareness and activation campaign built around the theme of mobility

What happens when everyday movement can no longer be taken for granted?

For people living with a severe, autoimmune, neuromuscular condition like MG (Myasthenia Gravis), this is not a hypothetical question. Fatigue, muscle weakness and fluctuating symptoms can turn everyday activities into constant adaptations.

Mobility is not only about walking from one place to another. It is also about planning ahead, managing energy, staying independent, continuing to work, maintaining social connections, and navigating uncertainty day after day.

You do not have to face these challenges alone.

That is why we are launching Dare to Move, an initiative designed to create a space for connection, support, and shared experiences around mobility and severe autoimmune diseases.

Dare to Move: Exploring mobility together

Living with MG means facing daily questions: can I still travel the same way? How do I balance activity and rest? Will people understand what I am going through? What happens when symptoms suddenly change?

Dare to Move brings together people across Europe to explore mobility in all its dimensions: from diagnosis and access to care, to daily life, social participation, rights, cross border realities, and future outlook.

It aims to make visible what mobility truly means for people living with MG: not only the ability to move, but the ability to live independently and stay connected.

From June 2026 onwards, the initiative will unfold through public awareness activations, patient stories, and discussions culminating in European roundtables in Brussels this September.

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The daily challenges no one sees

For people living with MG, mobility is far from guaranteed. Its a severe autoimmune disease that causes muscle weakness and fatigue. The impact on daily life is profound (1)

49%
struggle with tiredness. 

30%

have problems with performing everyday activities.

22%

have feelings of anxiety and depression.

Voices breaking the silence

Real testimonials, real words. Voices from the community. 

“Even though they were young, I still had to ask [my kids] to give me a hand and to help me with things.” 

- Diana, a nurse living with Myasthenia Gravis since 2012 

“My husband always shows me the way, reminding me that no matter the challenges you face, the most important thing is to take it step by step, even if they’re tiny baby steps, even if you have to crawl.”

- Ewelina, member of a MG patient association

“It’s not the kind of everyday tiredness people usually experience. Imagine muscle aches every time you hold a plate, brush your teeth, or shower. It’s mentally and physically draining.”

- Jihane Sayadi-Herniere, a mother and manager living with Myasthenia Gravis

Find more testimonials on mg United

MED EU UNB 2600097 Date of preparation: May 2026

REFERENCES :

1. Dewilde S, Philips G, Paci S, et al, Patient reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real world digital study MyRealWorld MGBMJ Open 2023;13:e066445. doi: 10.1136/bmjopen 2022 066445  

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The essential role of exercise

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Dare to Care webinars

Watch our webinars to gain valuable insights and connect with the MG community.

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   You are never alone  

No matter what stage of the journey you’re on, know that you can find the resources, support and community you need.

2024 @argenx EU-UNB-24-00016

argenx, a global immunology company, created MG United to support people living with MG and those who care for them. By providing information on MG United, argenx aims to help improve the lives of people suffering from this autoimmune disease. MG United does not offer medical advice; always consult your healthcare team for personalised medical guidance. The brands listed are the trademarks of their respective owners.