Living with Myasthenia Gravis (MG) is a daily challenge. From managing physical and emotional symptoms to explaining this invisible disease to others, managing a career and adapting to work, the journey can be complex.
Navigating the healthcare system effectively is also crucial.
This section is dedicated to addressing these different aspects, offering insights and support to help you understand and manage MG, and reminding you that you are not alone in facing these challenges.
Keeping track of symptoms can help a person with MG gain a sense of control when faced with the unpredictability of their condition. Importantly, it can also help with treatment decisions as doctors are able to better determine what is or isn’t working.
Neurologists have a number of ways to check and measure MG symptoms but the most common is the MG Activities of Daily Living (MG-ADL) profile. Becoming familiar with it can help build mutual understanding and effectively set goals for the future.
You are never alone