Real people Real Stories

Welcome to “Real people, real stories”, where we bring together the heartfelt experiences of people living with Myasthenia Gravis (MG).

Whether you're a patient, carer or healthcare professional, immerse yourself in the authentic stories of people living with MG.

These testimonies offer a wealth of information, understanding and solidarity to help you feel less isolated as you face your daily challenges. Explore the diverse stories to find inspiration, support and a deeper connection to the MG community.

Navigating Motherhood with Myasthenia Gravis

Sylwia Lukomska's journey of raising children while managing myasthenia gravis (MG) is both challenging and inspiring. From unexpected complications during childbirth to redefining motherhood, Sylwia shares her strategies for balancing symptom management and parenting.

 Discover her insights on creating support networks, embracing imperfection, and finding humour amidst struggles. Read on for Sylwia's uplifting words and practical tips for mothers with MG. Dive into her story and find out how MG doesn't define her journey.

Mother holding her baby, navigating motherhood with Myasthenia Gravis

Real People, Real Myasthenia Gravis Stories

Jihane Sayadi-Herniere sharing her journey after being diagnosed with Myasthenia Gravis

Jihane’s experience with MG at work

Jihane shares her journey with Myasthenia Gravis, balancing work, motherhood, and resilience while advocating for workplace inclusion

Turning despair into hope

At just 16 years old, Dimitris Zaftis (Vice President of H-MG, the Hellenic Myasthenia Gravis Association) began experiencing the early symptoms of MG.

Man fighting Myasthenia Gravis with a positive attitude

Fighting MG with positivity

Faced with the challenges of MG, Matthieu has turned his journey into a source of inspiration, a living example of unwavering determination.

Navigating motherhood with MG

Sylwia Lukomska, president of the MyasteniaFace2Face, shares her inspiring story of facing the trials of MG while raising her children.

Ewelina and Tomasz Susiak facing Myasthenia Gravis challenges together as a couple

Ewelina and Tomasz: Partners in resilience

Ewelina and Tomasz prove that with Myasthenia Gravis, resilience comes from teamwork, patience, and celebrating small victories together.

Matthieu from France sharing his experience with Myasthenia Gravis

MG should never be a debate

Discover Matthieu’s journey with Myasthenia Gravis and how “extreme planning” helps him balance life, work, and family with resilience

Diana explains what has changed for her with Myasthenie gravis.

Pacing with purpose

From diagnosis to resilience, Diana’s journey with Myasthenia Gravis shows how pacing, support, and strength lead to a fulfilling life.

Sylwia and her daughter sharing their journey with Myasthenia Gravis.

Strengthening support for MG patients

A mother with Myasthenia Gravis and her daughter built a support network for patients. Read how empathy and honesty reshape their lives.

Eran from Israel sharing his experience with Myasthenia Gravis

Eran the fighter

Former nurse Eran shares his life with Myasthenia Gravis, showing how love, resilience, and hobbies help him keep fighting every day.

Sasa Ciber from Slovenia raising awareness for MG

From isolation to community

Saša found hope after isolation with Myasthenia Gravis. Discover how patient communities and awareness tools transformed her life.

Diana sharing how she adapted her personal and professional life to live fully with Myasthenia Gravis

Life at a new rhythm

Diana redefined life with Myasthenia Gravis, balancing motherhood, career, and health by living at a new rhythm. Discover her inspiring path.

Marta sharing how she adapted her personal and professional life after being diagnosed with MG at age 20.

Reinventing life with MG

At 20, Marta’s life changed with Myasthenia Gravis. Her story of resilience shows how adaptation and support create new possibilities.

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argenx, a global immunology company, created MG United to support people living with MG and those who care for them. By providing information on MG United, argenx aims to help improve the lives of people suffering from this autoimmune disease. MG United does not offer medical advice; always consult your healthcare team for personalised medical guidance. The brands listed are the trademarks of their respective owners.

Real people, real stories