Community resources

Connecting with the Myasthenia Gravis community

Welcome to the "Community Resources" section, your gateway to invaluable support from the Myasthenia Gravis (MG) community. Here, you'll find connections to MG associations, the latest news, and upcoming events. Patient advocacy organizations are a vital resource for individuals with Myasthenia Gravis, their caregivers, and relatives, offering support groups, educational materials, and community-building opportunities.

Often established by those directly impacted by MG, these organizations have grown from small beginnings into extensive networks of shared experiences and mutual support. If you're looking to get involved, explore our list of advocacy organizations to find the right fit for you.

Connect with Myasthenia Gravis associations in your country

 

Find their contact details below.

Logo of Association Belge Contre Les Maladies Neuro-Musculaires Asbl (ABMM)

Association Belge contre les Maladies neuro – Musculaires Asbl (ABMM)

Lutgarde ALLARD
Coordinator of ABMM

allard.lutgarde@skynet.be

Logo of Associazione Italiana Miastenia (AIM)

Associazione Italiana Miastenia (AIM)

Romina Gibertoni
Coordinator of AIM

aim@miastenia.it

Logo of Associations des myasthéniques isolés & Solidaires (AMIS)

Association des Myasthéniques Isolés & Solidaires (AMIS)

Pierre Boulanger
President AMiS

association.amis@myasthenie.com

Logo of Asociatia Nationala Miastenia Gravis Romania (MG-RO)

Asociatia Nationala Miastenia Gravis Romania (MG-RO)

Adriana Harja
President of Romanian Myasthenia Gravis Association

asociatia.miasteina@gmail.com

Logo of Hellenic Myasthenia Gravis Association (H-MGA)

Hellenic Myasthenia Gravis Association (H-MGA)

Dimitris Zaftis
Vice President of H-MGA

mr.enduras@gmail.com

Logo of Groupe Myasthenique AFM Telethon

Groupe d'intérêt myasthénies de l'AFM-Téléthon

Annie Archer
Responsable du groupe d'intérêt myasthénies de l'AFM-Téléthon

myasthenie@afm-telethon.fr

Logo of MG Face to Face Association

MG Face to Face Association

Sylwia Łukomska
President of Face to Face Mysathenia

miasteniaface2face@gmail.com

Logo of European Myasthenia Gravis Patients’ Associations (EuMGA)

European Association of Myasthenia Gravis Patients’ Associations

Lut Allard
Member of the board

allard.lutgarde@skynet.be

Logo of Kameleon - Association of people affected by neuromuscular diseases

Association of People Affected by Neuromuscular Diseases (Kameleon)

Anna Wolska
President of Kameleon

wolska.kameleon@gmail.com

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   You are never alone  

No matter what stage of the journey you’re on, know that you can find the resources, support and community you need.