Digital solutions for Myasthenia Gravis management

Trying to manage Myasthenia Gravis is a task in itself.

One way to help you stay organised could be right in the palm of your hand. When you're living with MG, it can sometimes feel like you need a personal assistant to keep track of everything. From doctor's appointments to symptom monitoring, things can get complicated - quickly. But you've got a powerful tool at your fingertips that can help you better manage life with MG: your smartphone.

Even if you're not the most tech-savvy person in the world, there are apps designed to make it easier to record and share information with your care team and family.

Man discussing Myasthenia Gravis management with a healthcare professional

Apps you may already have on your phone

Some apps are designed to help you track your MG symptoms more easily.

 Calendar

Living with MG often means a busy schedule, and it's easy to lose track of things. Consider using a calendar app to store information about your appointments. You can also set alarms to complete the MG-ADL scale. Sometimes that little 'thing' is all you need to remind you.

 Voice Memo

Weak hands are common for many people with MG. If you can't type or write, simply ask your phone's virtual assistant to launch the Voice Memo app. Apps like this can be used to make a quick, pain-free note to yourself or to record your doctor's advice during an appointment, so you and your loved ones don't forget any important details. Just make sure you get your care provider's permission before recording.

  Notes app

The Notes app can be used to keep a diary about living with MG or to jot down quick digital reminders. You can share your notes with your family via text or email so they're always aware of how you're feeling. You can also include your care team if they're open to it.

Managing myasthenia gravis (MG) can be challenging, but digital solutions offer a way to stay organised and on top of your care.

Your smartphone, a tool you already have, can become a powerful assistant in managing your condition. Calendar, voice memo and note-taking apps can streamline symptom tracking, appointment reminders and communication with your care team and family.

 These easy-to-use tools can make life with MG a little more manageable, allowing you to focus more on your wellbeing and less on the logistics of your condition.

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Neurologists have several ways to measure MG symptoms, but the most common is the MG Activities of Daily Living (MG-ADL) profile. Understanding how it works can help.

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Benefits of MG tracking

Consistency with tracking is essential to better understand symptoms, their impact and how they can change over time.

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Talking to your doctor

Long-term management of MG takes a strong partnership between you and your care team.  Check our tips to help you get started.

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argenx, a global immunology company, created MG United to support people living with MG and those who care for them. By providing information on MG United, argenx aims to help improve the lives of people suffering from this autoimmune disease. MG United does not offer medical advice; always consult your healthcare team for personalised medical guidance. The brands listed are the trademarks of their respective owners.